Vaginismus as a symptom of endometriosis

How common is the symptom Vaginismus among people with endometriosis?

48,84% of people with endometriosis reported Vaginismus as a symptom of endometriosis in our survey.

How common is the symptom Vaginismus among people with endometriosis compared to the non-affected group?

5,52% of people with endometriosis suffer from the symptom Vaginismus very strong compared to a prevalence of 1,27% among non-affected individuals.
The following table shows the symptom Vaginismus in people with endometriosis compared to non-affected individuals. The scale ranges from 1 (not at all) to 5 (very strong).

Symptom Vaginismus in endometriosis - comparison with control group

Vaginismus in endometriosis
(n = 1685)
51,16%
16,44%
18,10%
8,78%
5,52%
Vaginismus in non-affected individuals
(n = 157)
85,35%
6,37%
5,10%
1,91%
1,27%

Tabular comparison of the prevalence of Vaginismus

Symptom severity Endometriosis Non-affected Comparison
not at all 51,16% 85,35% -34,19%
slightly 16,44% 6,37% 10,07%
moderate 18,10% 5,10% 13,01%
strong 8,78% 1,91% 6,87%
very strong 5,52% 1,27% 4,25%

Symptoms that could be related to Vaginismus

Based on the datasets, we calculated the Kendall correlation. The following symptoms could be related to Vaginismus.

Symptom name Correlation
Pain during intercourse moderate correlation (33,00%)
Pain after intercourse moderate correlation (31,00%)

Vaginismus in endometriosis

Vaginismus is the medical term for the painful, spasmodic contraction of the vaginal and pelvic floor muscles. The spasm occurs, among other situations, during sexual intercourse or when you try to insert a tampon. The cause of vaginismus is psychological in nature. Nevertheless, endometriosis can be a cause of vaginismus.

The symptoms of vaginismus are:

  • Spasm of the vaginal and pelvic floor muscles, making penile penetration or insertion of a tampon impossible.
  • Pain during sexual intercourse
  • Fear of pain and of injury from sexual intercourse

Endometriosis is clearly a physical, not a psychological, condition. Clusters of cells that resemble the endometrium (the uterine lining) develop outside the uterus. The so-called endometriotic lesions are most often found in the pelvis. However, more distant organs such as the bowel, diaphragm, lungs, and brain can also be affected. The lesions are subject to the hormonal cycle that also regulates the endometrium itself. They therefore initially grow and then bleed. If the blood cannot leave the body, inflammation and often adhesions and scarring result.

Endometriosis can be a cause of vaginismus in these ways:

  • Fear of pain: If endometriotic lesions are located around the vagina, mass effect, scarring, and adhesions can cause pain during or after sexual intercourse. Fear of this pain can trigger spasm of the vaginal and pelvic floor muscles.
  • Stress as a cause of vaginismus: Endometriosis, especially in advanced stages, can lead to chronic pain. This, in turn, creates a high level of stress for you.
  • Shame/disrupted relationship with your own body: Especially if you experience so-called endo belly—abdominal swelling due to bloating—you may develop a disrupted relationship with your own body.

Treatment consists of a combination of specialized pelvic floor muscle training and relaxation exercises. It is also important that you talk with your partner about the situation and reach out to your doctor.

Did you know that you can also have a big influence on endometriosis symptoms yourself? In the Endo App you learn self-management techniques for endometriosis and find many interactive exercises to relieve symptoms.