Joint pain as a symptom of endometriosis

How common is the symptom Joint pain among people with endometriosis?

72,89% of people with endometriosis reported Joint pain as a symptom of endometriosis in our survey.

How common is the symptom Joint pain among people with endometriosis compared to the non-affected group?

12,37% of people with endometriosis suffer from the symptom Joint pain very strong compared to a prevalence of 4,43% among non-affected individuals.
The following table shows the symptom Joint pain in people with endometriosis compared to non-affected individuals. The scale ranges from 1 (not at all) to 5 (very strong).

Symptom Joint pain in endometriosis - comparison with control group

Joint pain in endometriosis
(n = 1730)
27,11%
17,69%
23,53%
19,31%
12,37%
Joint pain in non-affected individuals
(n = 158)
52,53%
25,95%
11,39%
5,70%
4,43%

Tabular comparison of the prevalence of Joint pain

Symptom severity Endometriosis Non-affected Comparison
not at all 27,11% 52,53% -25,42%
slightly 17,69% 25,95% -8,26%
moderate 23,53% 11,39% 12,13%
strong 19,31% 5,70% 13,61%
very strong 12,37% 4,43% 7,94%

Symptoms that could be related to Joint pain

Based on the datasets, we calculated the Kendall correlation. The following symptoms could be related to Joint pain.

Symptom name Correlation
Limb pain strong correlation (58,00%)
Leg pain moderate correlation (41,00%)
Shoulder pain moderate correlation (36,00%)
Numbness in legs moderate correlation (35,00%)
Back pain moderate correlation (33,00%)
Numbness in hands moderate correlation (31,00%)
Kidney pain moderate correlation (31,00%)
Abdominal pain outside the lower abdomen weak correlation (29,00%)
Shortness of breath weak correlation (29,00%)
Exhaustion / Fatigue weak correlation (29,00%)
Dizziness weak correlation (29,00%)
Headaches / Migraine weak correlation (26,00%)
Taste changes (e.g. iron taste) weak correlation (26,00%)
Chills weak correlation (25,00%)
Chest pain weak correlation (25,00%)
Hot flashes weak correlation (24,00%)
Belching weak correlation (23,00%)
Nausea weak correlation (23,00%)
Pain during urination weak correlation (23,00%)
Feeling cold / shivering weak correlation (22,00%)
Hearing loss weak correlation (21,00%)
Depression weak correlation (21,00%)
Heartburn weak correlation (21,00%)
Frequent urination weak correlation (20,00%)
Urge to urinate without passing urine weak correlation (20,00%)
Pain after intercourse weak correlation (20,00%)

Joint pain in endometriosis

Endometriosis is considered a gynecologic condition. However, it is now clear that endometriosis does not cause only localized symptoms limited to the female reproductive organs. Endometriosis is a systemic disease that causes severe, chronic symptoms in a significant number of those affected. In addition to well-known symptoms such as menstrual pain, abnormal bleeding, and reduced fertility, you may also experience joint pain. But how does endometriosis cause joint pain?

Endometriosis is a benign but chronic condition. It can be “silent,” meaning asymptomatic, or present with acute and also chronic, severe symptoms. In endometriosis, lesions composed of endometrium-like tissue grow outside the uterus. These endometriotic lesions enlarge over the course of the menstrual cycle and then bleed. As a result, adhesions, scarring, cyst formation, and chronic inflammation can develop. The lesions can occur on organs in the pelvis or elsewhere in the abdomen, including the peritoneum, diaphragm, and lungs. The pelvic nerves can also be affected. A distinction is made between superficial and deeply infiltrating endometriosis.

  • Endometriotic lesions on the pelvic nerves: This can result in severe to very severe leg pain, which may also affect your joints.
  • Diaphragmatic endometriosis: These lesions can cause shoulder pain that radiates into the fingers. Because lesions on the diaphragm most often occur on the right side, the right shoulder is usually affected.
  • Chronic inflammation: This can lead to generalized pain that also involves the joints.
  • Physical inactivity: Because of pain and coexisting conditions such as depression and fatigue, many people tend to withdraw. They often adopt protective postures and move too little. Lack of movement frequently leads to joint pain.

Did you know that you can also have a big influence on endometriosis symptoms yourself? In the Endo App you learn self-management techniques for endometriosis and find many interactive exercises to relieve symptoms.