Feeling cold / shivering as a symptom of endometriosis

How common is the symptom Feeling cold / shivering among people with endometriosis?

86,20% of people with endometriosis reported Feeling cold / shivering as a symptom of endometriosis in our survey.

How common is the symptom Feeling cold / shivering among people with endometriosis compared to the non-affected group?

24,02% of people with endometriosis suffer from the symptom Feeling cold / shivering very strong compared to a prevalence of 8,18% among non-affected individuals.
The following table shows the symptom Feeling cold / shivering in people with endometriosis compared to non-affected individuals. The scale ranges from 1 (not at all) to 5 (very strong).

Symptom Feeling cold / shivering in endometriosis - comparison with control group

Feeling cold / shivering in endometriosis
(n = 1732)
13,80%
13,34%
21,65%
27,19%
24,02%
Feeling cold / shivering in non-affected individuals
(n = 159)
34,59%
25,79%
16,35%
15,09%
8,18%

Tabular comparison of the prevalence of Feeling cold / shivering

Symptom severity Endometriosis Non-affected Comparison
not at all 13,80% 34,59% -20,79%
slightly 13,34% 25,79% -12,45%
moderate 21,65% 16,35% 5,30%
strong 27,19% 15,09% 12,10%
very strong 24,02% 8,18% 15,84%

Symptoms that could be related to Feeling cold / shivering

Based on the datasets, we calculated the Kendall correlation. The following symptoms could be related to Feeling cold / shivering.

Symptom name Correlation
Chills moderate correlation (36,00%)
Exhaustion / Fatigue weak correlation (25,00%)
Joint pain weak correlation (22,00%)
Loss of appetite weak correlation (22,00%)
Limb pain weak correlation (22,00%)
Dizziness weak correlation (21,00%)
Nausea weak correlation (20,00%)
Frequent urination weak correlation (20,00%)

Feeling cold / shivering in endometriosis

Cold hands and feet, and a pervasive internal cold that even warm clothing cannot dispel, are a constant or recurring burden for those affected. A sensation of cold and feeling chilled are symptoms that many people experience. Women in particular tend to shiver quite quickly. The causes are varied and range from benign factors to conditions that require treatment. Endometriosis can also – directly as well as indirectly – be responsible for frequent sensations of cold and feeling chilled.

Endometriosis is a gynecologic condition. However, it has systemic effects, as its symptoms by no means affect only the female reproductive organs. The condition is characterized by lesions of endometrial-like tissue outside the uterus. These can be found in the pelvis, throughout the abdominal cavity, and even in the lungs or brain. Driven by the female hormonal cycle, they first grow and then bleed. The blood usually remains in the body and can cause inflammation, adhesions, and scarring. Cysts can also develop. The hallmark symptoms of endometriosis are severe pain during menstruation, menstrual bleeding disorders, and reduced fertility.

In these ways, endometriosis – during menstruation or even chronically – can lead to a sensation of cold and feeling chilled:

  • Iron deficiency: Because of heavy bleeding, which is common in people with endometriosis, iron deficiency can occur. Among its symptoms are feeling chilled and a general sensation of cold.
  • Low blood pressure: Heavy menstrual bleeding and severe pain, which are hallmark symptoms of endometriosis, can result in low blood pressure. People with low blood pressure tend to feel cold.
  • Hormonal fluctuations: In many people with endometriosis, the hormonal balance is disrupted on multiple levels, which can lead to increased feelings of cold and chilliness.
  • Stress: Persistent pain, resulting sleep disturbances, and exhaustion can lead to high stress levels. This, in turn, promotes a tendency to feel cold.
  • Thyroid dysfunction: Thyroid disorders, especially hypothyroidism, cause many affected individuals to feel increased cold. Although scientists do not yet know exactly why there is an association, it is clear that people with endometriosis are significantly more likely to have a thyroid dysfunction than other women.

Did you know that you can also have a big influence on endometriosis symptoms yourself? In the Endo App you learn self-management techniques for endometriosis and find many interactive exercises to relieve symptoms.