Clotted bleeding as a symptom of endometriosis

How common is the symptom Clotted bleeding among people with endometriosis?

84,12% of people with endometriosis reported Clotted bleeding as a symptom of endometriosis in our survey.

How common is the symptom Clotted bleeding among people with endometriosis compared to the non-affected group?

25,31% of people with endometriosis suffer from the symptom Clotted bleeding very strong compared to a prevalence of 1,26% among non-affected individuals.
The following table shows the symptom Clotted bleeding in people with endometriosis compared to non-affected individuals. The scale ranges from 1 (not at all) to 5 (very strong).

Symptom Clotted bleeding in endometriosis - comparison with control group

Clotted bleeding in endometriosis
(n = 1719)
15,88%
9,48%
21,41%
27,92%
25,31%
Clotted bleeding in non-affected individuals
(n = 159)
45,91%
22,01%
20,13%
10,69%
1,26%

Tabular comparison of the prevalence of Clotted bleeding

Symptom severity Endometriosis Non-affected Comparison
not at all 15,88% 45,91% -30,03%
slightly 9,48% 22,01% -12,53%
moderate 21,41% 20,13% 1,28%
strong 27,92% 10,69% 17,23%
very strong 25,31% 1,26% 24,05%

Symptoms that could be related to Clotted bleeding

Based on the datasets, we calculated the Kendall correlation. The following symptoms could be related to Clotted bleeding.

Symptom name Correlation
Heavy menstrual bleeding moderate correlation (40,00%)
Prolonged menstrual bleeding moderate correlation (31,00%)
Severe menstrual cramps weak correlation (27,00%)

Clotted bleeding in endometriosis

Sometimes, during menstruation, bloody clots can be expelled along with the normal menstrual blood. These are usually dark red and have a viscous-elastic consistency. Medical professionals refer to these as "coagula." The term coagulum, or coagula, is derived from the Latin word "coagulare," which means "to curdle" in English. These are gelatinous blood blisters composed of red blood cells, white blood cells, and platelets. They form when the blood coagulates. The causes for the formation of these bloody clots can vary, one of which is endometriosis.

The blood clots occur when blood loss is above average. The threshold for what is considered a normal amount of menstrual blood and when it is classified as heavy bleeding is 80 ml per menstruation. Determining the blood volume is not straightforward. However, the following parameters suggest that it is a case of heavy menstrual bleeding:

  • Frequent changing of pads/tampons (more than 5 pads per day)
  • Fatigue, exhaustion, lack of energy
  • Presence of blood clots in the menstrual blood

If a menstrual bleeding is stronger than usual once, it is generally harmless. However, if heavy bleeding occurs regularly, a medical evaluation by a physician should be conducted.

Around one in ten women of reproductive age is affected by endometriosis. This gynecological condition is characterized by the growth of so-called endometriosis lesions outside the uterus. These are cell clusters resembling the tissue of the uterine lining. These growths, like the uterine lining itself, initially thicken during the cycle and then shed. Since this blood often cannot be expelled from the body, it bleeds into the tissue or abdominal cavity, where it can lead to inflammation, adhesions, scarring, or cyst formation. Endometriosis lesions mostly grow in the pelvic area but can also occur on the diaphragm, lungs, and brain. In a specific form of endometriosis called adenomyosis, the lesions grow into the uterine wall. Women with this particular form of endometriosis often experience especially heavy bleeding. However, even "normal" endometriosis can result in increased bleeding. In addition to increased blood loss, clumpy bleeding is also a symptom of adenomyosis.

Did you know that you can also have a big influence on endometriosis symptoms yourself? In the Endo App you learn self-management techniques for endometriosis and find many interactive exercises to relieve symptoms.